Kermit’s Second Birthday!

Today it is exactly two years since I had my bowel cancer surgery when my colon was removed and my permanent ileostomy (Kermit) was created. Really I don’t know where the time has gone. Two years!

Unfortunately, in view of my more recent surgery, I have not had the energy or time to hold a birthday party for him. I would like to have invited my two friends whom I met when we were all in hospital together two years ago, and I would like to have made Kermit a birthday cake like I did last year, but it wasn’t to be!

Here’s a picture of the cake I made last year to celebrate Kermit’s first birthday. Hope he enjoys the virtual version this year – I’ll try and do better next year!

What a journey this two years has been. 2015 was a year out of my life really, dealing with the cancer diagnosis and the emotional upheaval as I prepared for surgery (the operation was postponed twice and I was under severe emotional stress for family reasons – thank goodness for my wonderful hubby who saw me through it all!) and then came the physical recovery and adjusting to my new way of life with a stoma. Once I was sufficiently recovered from the operation, I had to undergo 6 months of intensive chemo which really took it out of me, and by the time that was finished, I had the autumn to begin recovering, with my cancer all-clear being given at the end of November. What a rollercoaster! You can read the whole journey on My Cancer Diary on my other blog.

2016 was a good year all round, with my taking up several activities which I had given up several years ago because of ill health, thinking they were part of my past. These include singing and playing the guitar, restarting a Bible study group, and baking! These have all brought me a lot of pleasure, especially the baking! I have been able to keep my art going throughout all this, with periods when my creative mojo disappeared, but it’s always there for me when I am feeling well.

This year I was looking forward to settling back into a normal life – if a different sort of normal from before! However, I had to face emergency surgery at the beginning of February for an intestinal obstruction caused by my parastomal hernia. This has now been temporarily repaired and I face further surgery to create a more permanent solution.

I am very, very happy to have Kermit. Before he came, I was struggling with ulcerative colitis which, although horrible, was probably never going to be bad enough to necessitate a stoma, so I’d have had to put up with it for the rest of my life, with medication. However, when the cancer happened, it turned out to be a blessing in disguise as the whole inflamed colon was removed and for the first time for years, I found myself in control, and once I’d learnt to manage Kermit and his bag, realised that even if it were possible, I’d never go back to how I was before! Kermit has changed my life, no doubt about it.

Anyone facing what I went through, I would say, be encouraged – it’s not nearly as bad as you think. Yes, you have to get through it all – the surgery, the treatment, adjusting to a new way of doing things, but once you are through that process, life is good!

Devon IA AGM at Kennford

I realised recently that it is a long time since I updated this blog. I am doing several posts today, to bring it up to date – each one will be dated as if I had done them at the time, to keep things in chronological order, but I am in fact writing them in early May.

The Ileostomy and Internal Pouch Support Group (IA), formerly known as the Ileostomy Association, of which I am a member, had its local AGM at Kennford in Devon on 5th March. These meetings are always good to attend because you get to meet up with others in the same situation, meet old friends and make new ones. There is always a good exchange of ideas and experiences, both informally, chatting over coffee and lunch, and through discussion in the more formal part of the meeting. They have a table where you can put unwanted supplies, and take whatever you need, and they have the usual raffle and sometimes a quiz. There is usually a visiting speaker.

On this occasion we had a colorectal surgeon from the Royal Devon and Exeter Hospital in Exeter, speaking about hernias. A parastomal hernia is a very common problem indeed with ostomates, particularly people with a colostomy, and especially if they are older, and overweight, and being a smoker puts one at greater risk – the incidence of parastomal hernias is quite high, because the abdominal muscle wall is compromised by cutting a hole through which the intestine is brought out to form the stoma. He spoke about the problems of repairing them and how the risk of recurrence is high, and other measures that can be taken to prevent them developing. Some surgeons are now inserting a mesh around the stoma when the stoma is first created, and while this does strengthen the weak point, if further surgery is required (for instance if the stoma is reversed, or there are further abdominal problems requiring surgery) the presence of the mesh makes it a lot more difficult to operate. He spoke about synthetic meshes and also the use of pigskin!

A hernia can develop even through a simple activity like coughing or sneezing! In order to prevent hernias developing one should avoid heavy lifting, and if one has a severe cough, support one’s abdomen when coughing. There are various support garments that can be worn as well, but he said that these are more useful after one has developed a hernia than in prevention, although my stoma nurse did refer me to a fitter of support garments as a preventative measure.

He spoke about the anatomy of the abdomen and the different muscles involved. He said that in recent years, surgeons have tended to site stomas more towards the midline than before, and this could help in hernia prevention over time; being sited more towards the side of the abdomen, the musculature is weaker and more likely to herniate.

He asked for a show of hands and quite a few people indicated that they had developed hernias.

In the morning we had the business part of the meeting – the AGM, with appointment of new officers, financial report, etc. etc. and details of future meetings, outings, presentations by manufacturers, etc. Lunch was provided, and tea and coffee.